Behind
this sweet girl cheerfulness proved to have limitations which is not
possible in the normal human experience in general, this sweet girl had a
very rare genetic disorder that caused this sweet girl never
slept, unable to speak, see and walk.
Rio Vicary
Rio Vicary (1 year) suffered Angleman's Syndrome (AS), a rare genetic
disease that made him never sleep, could not walk and talk. But with all the condition, Rio still managed to smile everyday for her parents.
This brave boy diagnosed when he was 2 weeks and had spent most of his
life in the hospital, where he was monitored by many consultants.
Besides Angleman's Syndrome, Rio also had an albino who could not see him. Even so, he loved the light and enjoyed the music.
Rio getting special treatment at Sheffield Children's Hospital, UK,
where he has spent most of her short life since the diagnosis of rare
diseases.
"Because Rio didn't sleep and wants to play all hours of rest, we get three nights a week. Without it, I don't think will get over it, "said his mother, Gemma (27 years).
Rio is now equipped with a tracheotomy, which is a tube inserted into his neck.
This is done because Gemma had a terrible experienced, as he
had to take quick action to save the life of his son's choking.
The tube is also the thing that can save the lives of Rio because he was coughing all the time.
Rio may make a noise but he could never speak, because that's one of
the symptoms of Angleman's Syndrome which also effect intellectual
development and cause massive sleep disorders.
Children with Angleman's Syndrome commonly known as angels, because his face is always cheerful despite its shortcomings.
This condition occurs due to chromosome disorder that is inherited from his mother and effects one in 25,000 children in the world.
Children born with this syndrome typically appear at birth without any
major flaws, but developmental delays become apparent after six months.
The ability to sit just happened at the age of 12 months,and walking at age 3 to 4 years. Sufferers also have a speech impairment.
Children with Angleman's Syndrome often laugh and smile, especially in response to stimuli. Flapping hand and hyperactivity are common symptoms.
With all its shortcomings, children with Angleman's Syndrome can still have good general health and normal life.
So, we should learn from this story because we still have perfect and healthy life. But, many people think that they are unlucky, ugly, etc.. How do you think when you become this boy? Can you still happy like this boy? I hope after you read this articel, you get a precious moral. Believe or not ? :D